Wednesday, October 12, 2011

Nothing and Everything

Two lovely people pointed out today that I no longer blog.  It has been a while.  I haven't quit.  I've just run out of things to write about...   This writers block seems to have coincided with my excellent health status as of late.  This blog has always been my respite when I was feeling confusion or fear related to my CF.  I can honestly say that I have not been having any of these feelings.  I had clean margins following the pre-melanoma skin excision.  At my August pulm appointment, my PFT's were higher than they had been for 10 years and I feel equally as excellent! 

So what have I been filling my days with over the past two months, now that I have moved into a phase where I'm not being forced to obsess about CF day in and day out?  I've been working hard, loving my family and enjoying my off time immensely.  In the past 2 1/2 months I've traveled to New York City, Nova Scotia, Washington DC, Boston and Toronto.  Half of this travel was for work and half was for play.  My very favorite experience from these trips happened on my getaway with my husband to Boston.  I got to knock Whale Watching off of my bucket list.  It was absolutely breathtaking...amazing...wondrous!
























Last year at this time I feared that my life and my health would never return to "normal".  I was grieving the loss of the life I had before I had to incorporate CF into every hour of my existence.  For the past 2 months I have gotten to experience life as it was again and I couldn't be more thankful.  I don't want to waste a moment of it.  I now do an hour of treatments a day, take a couple handfuls of pills and complete an hour workout...CF does not own the other 22 hours.  So, I guess that's a big part of the reason I haven't been blogging.  I really see this as a CF blog and for now, at least, CF has been put in its place.

I came across 'Desiderata' today, I thought it related and I thought I'd share...

Go placidly amid the noise and haste, and remember what peace there may be in silence.

As far as possible, without surrender, be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant, they too have their story. Avoid loud and aggressive persons, they are vexations to the spirit.

If you compare yourself with others, you may... become vain and bitter; for always there will be greater and lesser persons than yourself. Enjoy your achievements as well as your plans. Keep interested in your own career, however humble; it is a real possession in the changing fortunes of time.

Exercise caution in your business affairs, for the world is full of trickery. But let this not blind you to what virtue there is; many persons strive for high ideals, and everywhere life is full of heroism. Be yourself. Especially, do not feign affection. Neither be cynical about love, for in the face of all aridity and disenchantment it is perennial as the grass.

Take kindly to the counsel of the years, gracefully surrendering the things of youth. Nurture strength of spirit to shield you in sudden misfortune. But do not distress yourself with imaginings. Many fears are born of fatigue and loneliness.

Beyond a wholesome discipline, be gentle with yourself. You are a child of the universe, no less than the trees and the stars; you have a right to be here. And whether or not it is clear to you, no doubt the universe is unfolding as it should.

Therefore be at peace with God, whatever you conceive Him to be, and whatever your labors and aspirations, in the noisy confusion of life, keep peace in your soul.

With all its sham, drudgery and broken dreams, it is still a beautiful world.

Be cheerful. Strive to be happy.

Max Ehrmann c.1920

8 comments:

Jen said...

Glad to hear you are feeling so well Stacey! I would love to cross whale watching off my bucket list one day as well. Also - thanks for posting 'Desiderata'. I definitely can relate to that and might even share on my own blog. :)

Judy Layton said...

Hello...I am a 66 year old grandmother with CF. I too am in a quiet pierod with my CF but have to be watchful for any cold,etc. I really didn't know anything about CF until 19 years ago ...until then I was in the hospital 2-3 times a year with pneumonia. Then my nephew was born with CF...family was tested and my brother and I tested positive...then EVERYTHING made sense!!! I was not a nutcase as some drs. wanted me to think. I had this very serious illness!! I taught school for 33 years(missed a lot of school) and retired on disibility 10 years ago...been good for the last 7 years..no hospitas for CF related problems!! Sooo I take one day at a time and enjoy my family AND pray everyday for a CURE!! It is near...

Anonymous said...

Stacey B, it's about time you got back to the keyboard and started pounding out a post. And it was a good one. You're not allowed to stay away so long. Write short updates. No one said it has to be War and Peace.

Happy you're in charge of CF these days. Not sure I agree that it's a cf blog as much as it is a Stacey B blog.

Keep feeling great and if there are no posts, then I'll know you're having fun.

Anonymous said...

Stacey, I just posted a novel long comment but it was erased. The gist: I want you to know that although you've satisfied my selfish desire for your blog posts, I'm so thrilled to hear you're too busy living and checking items off your bucket list to write. Hearing this is the best blog post of all. Keep it up.

Jamie said...

I LOVE this blog! And I kinda posted one similar the other day. What I'm doing when I'm not blogging is living, and I too mostly blog as a relief from CF, so since I have been feeling so good, no blog! My favorite lines from your blog- CF does not own the other 22 hours. and CF has been put in its place. LOVE

Rachel Olimb said...

LOVE this update, Stacey!!!

Anonymous said...

Alright Stacey!!! Here's to your better health and more freedom from CF. Loved the post.

GA Reader

Stacey said...

Thanks everyone!

Jenny, I highly recommend Whale Watching! Ah-mazing!

Judy, it gives me so much hope to hear stories about people like you who are living and breathing past the age of 60! Such and inspiration!

UC, I'm going to work on writing about things other than CF...we'll see how that goes. I am TOTALLY digging your post-a-day thing!

Lizi, you're the greatest. You're post today was amazing. Please keep those crackles at bay and stay well xoxo

Jamie, I am SO very happy that you have also been feeling great! Keep it up, my dear!

Rachel, your news this week was MUCH better than any positive health status blog from me. Congrats!

Yay! A new reader from Georgia! Thanks so much for shopping by and commenting!