I have a few friends with my gene combo on Kalydeco and it has changed their lives! I want to feel better, I want to breathe better, I want to cough less, I want to have more energy. This pill has done it for them!
I tried to see if my insurance would cover the Kalydeco off label for me, but they didn't like the $307,000 per year price tag. So, I'm going to try to get on it by going the research route. The other thing I'm hoping is that if I get accepted that I don't get placebo for the first 6 months.
That's a lot of hopes and wishes for one post!
