Hello out there! Hello? Is anybody out there? It's certainly been a while. I was asked twice today for an update, so I figured it was a fine time to dust off the keyboard and write a little.
Life has been busy. Life is always busy, so this isn't really new. I've been traveling a lot for work, with a fun family vacation to Florida thrown into the mix. We went to the Gulf Coast of Florida again this year. It was a great time!
The week I got back I traveled to Wichita, Kansas for work and got to meet up with Justine K., a recent (1.5 year) double-lung transplant recipient. I adore her!
On the health front my lungs have been pretty stable. I continue to take enough antibiotics to cure a village, but the side effects are manageable. To be honest, I have been dealing with more non-CF health issues lately. I am preparing for surgery in 3 weeks. I am preparing to have my 3rd organ removed. I will soon be saying Good Bye to this:
Out of respect of the one or two boy readers I have, I will spare you the gory details. Half of me is looking forward to being rid of this nuisance of an organ, while part of me is a tiny bit sad...feeling as if I'm losing my womanhood. Another part of me is wondering how many non-essential organs a girl can do without. This would be the 3rd organ I will be ridding myself of. My uterus is preceded in death by my gall bladder and appendix. I'm tempted to ask if they can take my spleen and tonsils while I'm under, if only to avoid future organ removal surgeries. I really hate surgery. The night after laprascopic surgery can be a bitch.
I was starting to feel a bit bummed about these circumstances. I was feeling old...something I typically feel privileged to have achieved. The newly discovered gray hairs that I found last month didn't help the situation. I was feeling like I've gotten to a point in life where normal things are breaking down. Then I was feeling a huge amount of guilt for feeling this way, knowing that every year has been a gift. I was having such a complex mixture of emotions.
My funk didn't last long at all, though. Justine helped tremendously in reversing this attitude. Justine had the procedure I'm about to have one week prior to our meeting. She is 10 years younger than me. About six months ago she had feet of both her small and large intestines removed. A year and a half ago she had both lungs removed and replaced. She has also had her gall bladder out. Justine has definitely got me beat when it comes to organ loss. Just meeting her gave me that dose of perspective I needed. Have I told you yet that I love Justine!
I returned home from Kansas, dyed my hair and changed my attitude. The surgery is not such a big deal in the scheme of things. My uterus has served me well, but it's time that we part ways...and I have now come to terms with it. I'll take all the good juju you can spare! I'll keep you posted...


7 comments:
I'm sorry to hear about the hysterectomy! I've heard that can be a less-than-fun procedure to recover from. You'll be in my prayers! I'm glad to hear how you're doing, though.
Any surgery is a daunting task. Thinking of you and sending you lots of love!
That uterus of yours has served a wonderful purpose - just look at those beautiful kiddos! I understand your reluctance to part with it... for sentimental reasons as well as the inconvenience and pain of surgery. I'll definitely be thinking about you!
Finally catching up on my reading. Wow, I've missed a lot! I'm sure the surgery will go well and you'll sail through it. Don't spend your days wallowing in the "woe is me, my uterus is no more..." Get out there and shake that bootay! You're not getting older, girl. You're getting BETTER!
I'll be thinking about you as you and "the organ" part ways! So glad to hear your lungs are behaving. Take care!
I have loved finding your blog and will probably try to read everything at some point! I would love to talk to you more in the future. I have the Delta508 & R117H but have just recently found out because of genetic testing for infertility. I've always had respiratory & digestive issues my entire life but never had a "reason" for them. I was hospitalized in 2007 with pancreatitis & infected gallbladder and had that removed. Seemed to help, but I was just hospitalized with pancreatitis again. I DO NOT DRINK ALCOHOL and in fact can't even digest it. None of the doctors in my area are familiar with CF and it seems the CF centers are more geared toward pulmonary issues or pediatrics and I'm about to be 35. Any direction or advice you could give in how to move forward would be greatly appreciated!It's very frustrating when even the doctors don't know what the heck to do with you. :) Will be praying for a successful surgery & fast recovery!
Thanks all! Surgery was Friday and it couldn't have gone better. I'm mending well.
Christy, welcome to my blog. I'm sorry to hear about your diagnosis. People with our gene combo are very susceptible to Pancreatitis. It's a very common for us for some reason, even though I've never had it. I thunk the diagnosis may help answer a lot of questions for you. My advice would be to start seeing a CF specialist. You need someone who knows what they are doing.
If you are on Facebook, feel free to friend me and we can communicate through there. I have a link on the sidebar of this blog to my FB page.
Stay well!
Stacey
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